September, 2006

Tips for Parents
by Becky Lowe

For most of us, September means Back to School. I recently ran into another mom in my district that has a child with autism. We both laughed about how we were so excited and happy that the kids were back in school. I stood at the bus stop on the first day and was ready to bust with happiness! Now, that may sound mean to other parents, but we understand how hard it is for our children to be off their routine and then looking for new (and sometimes crazy) things to occupy their time with during those long summer days. So, I thought I would come up with a few ideas for us, the parents, to do while our kids are at school.

  • Take a few minutes every day to just relax and collect your thoughts. Sometimes I feel like I am running all day long (rearranging the deck chairs on the Titanic…). If I don’t take a few minutes every day for myself, I may have to check myself into the loony bin! I love to read…Katie also loves to read and I hope this is a passion she and I can share. Katie has gotten into the habit of going to the library every Monday after her home-tutoring session. She goes for three movies and two books every week. I go for the fiction and the romance novels.
  • Educate yourself! Do your research and learn all you can during the school day without interruptions.
  • Communicate with your child’s teacher via e-mail (if available). I have found e-mail to be a great way to stay in touch with all of Katie’s teachers. When I am at the school to pick up the kids or drop something off, I usually catch a teacher off guard and they do not have the time to answer my questions. But, if I e-mail, the will usually answer my questions when they have the time and they have the correct answers! Also, e-mail gives you written communication so that if your child’s teacher says they are going to do something, you have it in writing that they will do it!
  • Volunteer at your child’s school. As the old phrase goes, “You get more flies with honey than you do with salt”.
  • Join a support group. When Katie was first diagnosed, I truly felt like we were the only people in the world going through this. Our Neurologist diagnosed her within 45 minutes and sent us on our way. We had little information and did not even know where to begin. I realized that my Yahoo search engine could only get me so far and I had no one in my life that understood the pain and loss that I was experiencing. I finally reached out to other parents who had children with special needs, not necessarily autism. I was relieved to find that my feelings were “normal” and that life would get better.
  • Find a hobby or do something for yourself. We all know that if we do not take care of ourselves, we will be constantly running on “low fuel”. A few years back, as a sat in the office of one of Katie’s doctors, I realized something. I had just finished explaining to the doctor all of Katie’s issues and my concerns. By the time I was finished with my list, I was crying uncontrollably. The doctor finally looked at me and said, “Now, what about YOUR list!” He was patient with me and explained that the list looked worse than it really was. He told me that if I did not get help for myself, whether psychiatric or something else, I was going to burn myself out and would be of no use to anyone! I left his office and immediately contacted my physician and set up a complete physical. From there, I realized I needed to start taking care of myself. If I spent all my time being angry and bitter, I was not going to be a very good mom nor was I going to be patient enough to deal with Katie.

I guess the most important thing I can say is to do things for yourself. Be a little selfish. We spend so much of our time doing for others it is important to remember that our health and well-being is a priority. If you get respite hours from your county, use them to take a short break! Do not feel guilty about having someone help you! Our lives are not easy! Take time to enjoy your friends, stay healthy and relax.

Becky Lowe
 

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